Tag: type 1 SMA
Nine-year-old Maggie Monnin and her 8-year-old sister Charlie have spinal muscular atrophy, a neurodegenerative disease that can be fatal. But their smiles are a lot brighter thanks to a surprise gift from Jason Kraft, who makes motorized tricycles that are typically for senior citizens. Dylan Dreyer reports for TODAY’s series The Upside.
“When Allison came back from her first ride on her own, she said to me, ‘I’ve never really seen our own neighborhood before’. And I’m thinking, ‘Oh my God, you’re free’.”