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Tag: Families of SMA

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As Seen On The Today Show – Liberty Trikes for Kids!

Nine-year-old Maggie Monnin and her 8-year-old sister Charlie have spinal muscular atrophy, a neurodegenerative disease that can be fatal. But their smiles are a lot brighter thanks to a surprise gift from Jason Kraft, who makes motorized tricycles that are typically for senior citizens. Dylan Dreyer reports for TODAY’s series The Upside.

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This Bucks County Bicycle Business is Changing the Lives of Kids with Spinal Muscular Atrophy.

“When Allison came back from her first ride on her own, she said to me, ‘I’ve never really seen our own neighborhood before’. And I’m thinking, ‘Oh my God, you’re free’.”

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Tags: bucks county, coronavirus, COVID-19, croydon, Cure SMA, Electric Bike Store, Electric Bike Technologies, Electric Trike, Families of SMA, genetic disorder, Jason Kraft, liberty trike, mobility issues, mobility problems, mobility solution, pedal assit, SMA, SMA Families, SMN1, spinal muscle atrophy, Spinraza, type 1 SMA, type 2 SMA, type 3 SMA, type 4 SMA, Werdnig-Hoffmann disease
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